WHO WE ARE
A foundation built around whole-person healing.
A foundation built around whole-person healing.
We exist for patients and families who need more than information — they need tenderness, community, practical support, and hope.
We exist for patients and families who need more than information — they need tenderness, community, practical support, and hope.
Healing includes the body, emotions, family, identity, and future.
Healing includes the body, emotions, family, identity, and future.
Our work is guided by dignity, warmth, access, community, and the belief that no one should have to move through heart disease alone.
Our work is guided by dignity, warmth, access, community, and the belief that no one should have to move through heart disease alone.
Jillian Thorne is the founder of Twice the Heart Foundation, a nonprofit born from her own experience of living with genetic heart disease and realizing how deeply the heart and mind are connected.
Jillian Thorne is the founder of Twice the Heart Foundation, a nonprofit born from her own experience of living with genetic heart disease and realizing how deeply the heart and mind are connected.
Diagnosed with hypertrophic cardiomyopathy (HCM) at 19, Jillian has spent more than two decades navigating life with heart disease, including two open-heart surgeries, a mechanical mitral valve replacement, and multiple cardiac devices. But some of the hardest parts of her experience weren’t the procedures themselves. They were learning how to live in a body that could feel unpredictable, carrying the fear and uncertainty that come with chronic illness, and finding herself again outside of being a patient.
Her years of patient advocacy, including working alongside leaders in the HCM community and helping bring the patient voice into research and education, eventually led her to create Twice the Heart Foundation. She wanted to build what she wished had existed when she was diagnosed: a place that cared for the person living inside the diagnosis.
Through mindfulness, movement, meditation, emotional wellness tools, community, education, and honest conversations about what it actually feels like to live with heart disease, Jillian is working to change the way we support patients beyond the medical side of care.
Twice the Heart is rooted in a simple belief: treating the heart should also mean caring for the human attached to it.
Diagnosed with hypertrophic cardiomyopathy (HCM) at 19, Jillian has spent more than two decades navigating life with heart disease, including two open-heart surgeries, a mechanical mitral valve replacement, and multiple cardiac devices. But some of the hardest parts of her experience weren’t the procedures themselves. They were learning how to live in a body that could feel unpredictable, carrying the fear and uncertainty that come with chronic illness, and finding herself again outside of being a patient.
Her years of patient advocacy, including working alongside leaders in the HCM community and helping bring the patient voice into research and education, eventually led her to create Twice the Heart Foundation. She wanted to build what she wished had existed when she was diagnosed: a place that cared for the person living inside the diagnosis.
Through mindfulness, movement, meditation, emotional wellness tools, community, education, and honest conversations about what it actually feels like to live with heart disease, Jillian is working to change the way we support patients beyond the medical side of care.
Twice the Heart is rooted in a simple belief: treating the heart should also mean caring for the human attached to it.